Projects per year
Personal profile
Research
Registered nurse (1989); PhD (2002) in medical science (neurology); Associate Professor of caring science (2007); Professor of neurological caring science (2011). Research group leader for PRO-CARE and head of subject (health sciences) at Kristianstad University. Coordinator of PMhealth (Swedish national network for Psychometrics and Metrology in the health sciences). Research areas include outcome measurement, assessment and evaluation, and observational and experimental clinical studies.
I received my PhD in 2002 based on a thesis (pdf, 727 kB) on clinical and patient-reported effects and in vivo functioning of embryonic dopaminergic cells transplanted to the striatum of people with Parkinson's disease. In parallel, I also engaged in other studies concerning, for example, long-term effects of subcutaneous apomorphine therapy for Parkinson's disease, patient-reported outcome measurement and health economics. Taken together, my PhD project and other concurrent activities largely came to shape the direction of my post-doctoral scientific profile.
My current research is focused measurement and understanding of consequences of ill health and outcomes following various interventions from the perspective of the affected person, as well as from clinical and societal perspectives. This work primarily involves long-term neurological and other conditions, but also other areas. My research can be summarized into three related areas:
- Development, evaluation and quality assurance of methods to assess and measure consequences of ill health and outcomes of interventions. The overall objective is to work towards metrologically sound person-centered and conceptually well-grounded approaches to assessment and measurement in clinical research and practice. Primarily work related to the development, construction and application of rating scale and questionnaire based assessment and measurement methods. This includes, e.g., cross-cultural translation and adaptation, response category interpretation and functioning, the meaning and impact of various scoring methodologies, as well as epistemological and ethical issues related to health outcomes assessment and measurement.
- Improved knowledge and understanding of various aspects of health and disease, and the relationships among such aspects, with an intention to contribute to the development of new and better preventive and therapeutic interventions.
- Studies regarding person-centered care, for example person-centered care from a patient perspective among people with long-term disorders, relationships between person-centered care and other factors, and person-centered care and vulnerable groups.
Methodologically, this work is primarily quantitative with a focus on psychometrics and metrology, particularly Rasch Measurement Theory (RMT). However, since qualitative aspects are central to measurement, assessment and evaluation processes, I also use qualitative methods and mixed methods, particularly Group Concept Mapping (GCM), on their own as well as integrated in quantification processes.
"The trouble with measurement is its seeming simplicity"
Unknown
Collaboration
National and international collaborations include representatives from academia/institutions (e.g., IHE, RI.SE, Linnaeus University, Vienna University, University of Copenhagen, Karolinska Institute), health care (e.g., Region Skåne, Region Sörmland, Karolinska University Hospital), industry (e.g., H. Lundbeck AB, Galen Research Ltd., Concept Systems Inc., Modus Outcomes), as well as governmental (e.g., the Swedish National Board of Health and Welfare) and non-governmental organizations (e.g., the International Parkinson and Movement Disorder Society, SWEMODIS/SwePARK, the Swedish Movement Disorder Caring Society).
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
Education/Academic qualification
PhD, Assessment of graft effects and function in cell replacement therapy for Parkinson’s disease, Lund University
Award Date: 2002-May-04
Swedish Standard Keywords
- Other Health Sciences (30399)
- Neurology (30207)
- Nursing (30305)
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Collaborations and top research areas from the last five years
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Kvalitetssäkring av kvalitetsregister
Hagell, P. (PI), Gasser, F. (CoI), Kristofer, Å. (Researcher), Odin, P. (CoI) & Bang Christensen, K. (Researcher)
24-11-01 → 30-10-31
Project: Research
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ActivPARK – Fysisk aktivitet hos personer med Parkinsons sjukdom
Franzén, E. (PI), Hagell, P. (Researcher), Bergquist, F. (Researcher), Johansson, G. (Researcher), Nilsson, M. H. (Researcher) & Sandberg, L. (Doctoral student)
24-03-04 → …
Project: Research
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Vårdmöten med personer som bor i utsatta områden ur ett personcentrerat perspektiv inom ambulanssjukvården
Hagell, P. (Supervisor), Björklund, S. (Doctoral student), Lilja Hagell, P. (Researcher) & Holmberg, M. (Assistent supervisor)
21-01-01 → …
Project: Research
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Personcentrerad öppenvård ur ett patientperspektiv
Hagell, P. (PI), Westergren, A. (Researcher), Bala, S.-V. (CoI), Gasser, F. (Doctoral student), Ekstrand, J. (Researcher), Nilsson, G. (Researcher), Edberg Matei, E. (Researcher), Edfors, E. (Researcher) & Behm, L. (Researcher)
19-01-01 → …
Project: Research
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Icke-motoriska symptom vid Parkinsons sjukdom
Hagell, P. (PI), Westergren, A. (Researcher), Lindskov, S. (Researcher), Sjöberg, K. (Researcher), Oskar, H. (Researcher), Broman, J.-E. (Researcher), Höglund, A. (Researcher), Pålhagen, S. (Researcher), Fredrikson, S. (Researcher) & Odin, P. (Researcher)
04-01-01 → …
Project: Research
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Influences on ambulance staff’s understandings and safeguarding of ethical values
Björklund, S., Hagell, P., Holmberg, M. & Lilja Hagell, P., 2025-May-26, In: Nursing Ethics. p. 1-14 09697330251344170.Research output: Contribution to journal › Article › peer-review
Open AccessFile -
Measurement properties of the Minimal Insomnia Symptom Scale (MISS) among cardiac arrest survivors: A Rasch evaluation study
Hellström, P., Israelsson, J., Blennow Nordström, E., Hjelm, C., Broström, A., Hagell, P. & Årestedt, K., 2025-Jan-28, In: Resuscitation Plus. 22, 100876.Research output: Contribution to journal › Article › peer-review
Open AccessFile13 Downloads (Pure) -
Measuring a family sense of coherence: a rasch-based study extending dyadic data analyses
Möllerberg, M. L., Årestedt, K., Hagell, P. & Melin, J., 2025-Jan-09, In: BMC Palliative Care. 24, 1, p. 8Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Downloads (Pure) -
Regulating Electronic Media for a good night Sleep among adolescents
Hedin, G., Norell-Clarke, A., Hagell, P., Hanne, T., Westergren, A. & Garmy, P., 2025-May-14.Research output: Contribution to conference › Oral presentation › peer-review
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The association between non-motor symptoms and cost in Parkinson’s disease
Gustafsson, A., Hjalte, F., Norlin, J., Odin, P. & Hagell, P., 2025-Mar-28, In: Journal of Neurology. 272, 4, 297.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Downloads (Pure)
Datasets
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A classical test theory evaluation of the Sleep Condition Indicator accounting for the ordinal nature of item response data
Hellström, A. (Creator), Hagell, P. (Creator), Broström, A. (Creator), Ulander, M. (Creator), Luik, A. I. (Creator), Espie, C. A. (Creator) & Årestedt, K. (Creator), figshare, 2019-Mar-14
DOI: 10.1371/journal.pone.0213533.s001
Dataset
Activities
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11th PMhealth workshop
Hagell, P. (Organiser), Westergren, A. (Member of programme committee) & Kristofer, Å. (Member of programme committee)
2025-Jun-12 → 2025-Jun-13Activity: Participating in or organising an event › Organising a conference, workshop, ...
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European Rasch Research & Teaching Group workshop
Hagell, P. (Participant)
2025-Jun-10 → 2025-Jun-11Activity: Participating in or organising an event › Participating in a conference, workshop, ...
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Halvtidsgranskare av doktorsavhandling
Hagell, P. (Examiner)
2024-Sept-25Activity: Examination and supervision › Examination
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Granskare av forskningsanslagsansökningar
Hagell, P. (Consultant)
2024-Jun-15 → 2024-Sept-06Activity: Consultancy and expert assignments › Expert assignments
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1st Scandinavian Applied Measurement Conference
Hagell, P. (Chair), Westergren, A. (Member of programme committee), Kristofer, Å. (Member of programme committee), Melin, J. (Member of programme committee) & Christensen, K. (Member of programme committee)
2024-Jun-12 → 2024-Jun-14Activity: Participating in or organising an event › Organisation of conference