Projects per year
Personal profile
Research
Registered nurse (1989); PhD (2002) in medical science (neurology); Associate Professor of caring science (2007); Professor of neurological caring science (2011). Research group leader for PRO-CARE and head of subject (health sciences) at Kristianstad University. Coordinator of PMhealth (Swedish national network for Psychometrics and Metrology in the health sciences). Research areas include outcome measurement, assessment and evaluation, and observational and experimental clinical studies.
I received my PhD in 2002 based on a thesis (pdf, 727 kB) on clinical and patient-reported effects and in vivo functioning of embryonic dopaminergic cells transplanted to the striatum of people with Parkinson's disease. In parallel, I also engaged in other studies concerning, for example, long-term effects of subcutaneous apomorphine therapy for Parkinson's disease, patient-reported outcome measurement and health economics. Taken together, my PhD project and other concurrent activities largely came to shape the direction of my post-doctoral scientific profile.
My current research is focused measurement and understanding of consequences of ill health and outcomes following various interventions from the perspective of the affected person, as well as from clinical and societal perspectives. This work primarily involves long-term neurological and other conditions, but also other areas. My research can be summarized into four related areas:
- Development, evaluation and quality assurance of methods to assess and measure consequences of ill health and outcomes of interventions. The overall objective is to work towards metrologically sound person-centered approaches to assessment and measurement in clinical research and practice.
- Methodological work related to the development, construction and application of rating scale and questionnaire based assessment and measurement methods. This includes, e.g., cross-cultural translation and adaptation, response category interpretation and functioning, the meaning and impact of various scoring methodologies, as well as epistemological and ethical issues related to health outcomes assessment and measurement.
- Improved knowledge and understanding of various aspects of health and disease, and the relationships among such aspects, with an intention to contribute to the development of new and better preventive and therapeutic interventions.
- Studies regarding person-centered care, for example how this can be evaluated from a patient perspective in outpatient care for people with long-term disorders, as well as regarding vulnerable groups in ambulance care.
Methodologically, this work is primarily quantitative with a focus on psychometrics and metrology, particularly Rasch Measurement Theory (RMT). However, since qualitative aspects are central to measurement, assessment and evaluation processes, I also use qualitative methods and mixed methods, particularly Group Concept Mapping (GCM), on their own as well as integrated in quantification processes.
"The trouble with measurement is its seeming simplicity"
Unknown
Collaboration
Active national as well as international collaborations include representatives from academia/institutions (e.g., IHE, RI.SE, Linnaeus University, Vienna University, University of East Anglia), health care (e.g., Region Skåne, Region Sörmland, Karolinska University Hospital), industry (e.g., H. Lundbeck AB, Galen Research Ltd., Concept Systems Inc., Modus Outcomes), as well as governmental (e.g., the Swedish National Board of Health and Welfare) and non-governmental organizations (e.g., the International Parkinson and Movement Disorder Society, Triskelion Norway, the Swedish Movement Disorder Caring Society).
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
Education/Academic qualification
PhD, Assessment of graft effects and function in cell replacement therapy for Parkinson’s disease, Lund University
Award Date: 2002-May-04
Swedish Standard Keywords
- Neurology (30207)
- Other Health Sciences (30399)
- Nursing (30305)
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Network
Projects
- 5 Active
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Jämlik, nära och säker vård för personer med Parkinson och deras närstående
Larsson, H., Haak, M., Hagell, P., Piculell, E. & Hellqvist, C.
23-01-01 → 24-12-31
Project: Research
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Vårdmöten med personer som bor i utsatta områden ur ett personcentrerat perspektiv inom ambulanssjukvården
Hagell, P., Björklund, S., Persson, M., Lilja Andersson, P. & Holmberg, M.
21-01-01 → …
Project: Research
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Personcentrerad öppenvård ur ett patientperspektiv
Hagell, P., Westergren, A., Bala, S., Gasser, F., Ekstrand, J., Nilsson, G., Edberg Matei, E. & Edfors, E.
19-01-01 → …
Project: Research
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Icke-motoriska symptom vid Parkinsons sjukdom
Hagell, P., Westergren, A., Lindskov, S., Sjöberg, K., Oskar, H., Broman, J., Höglund, A., Pålhagen, S. & Fredrikson, S.
04-01-01 → …
Project: Research
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A brief screening instrument for insomnia in adolescents: measurement properties of the Minimal Insomnia Symptom Scale (MISS)
Hedin, G., Garmy, P., Norell Clarke, A., Tønnesen, H., Hagell, P. & Westergren, A., 2022-May.Research output: Contribution to conference › Poster
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Clinical Impression of Severity Index for Parkinson's Disease and Its Association to Health-Related Quality of Life
Norlin, J. M., Kellerborg, K., Persson, U., Åström, D. O., Hagell, P., Martinez-Martin, P. & Odin, P., 2022-Dec-26, In: Movement Disorders Clinical Practice.Research output: Contribution to journal › Article › peer-review
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Evaluation of the Unidimensional Fatigue Impact Scale in Crohn’s Disease: the importance of local item dependency
Heaney, A., McKenna, S. P. & Hagell, P., 2022-Jun-01, In: Journal of Nursing Measurement. 30, 2, p. 345-360 16 p.Research output: Contribution to journal › Article › peer-review
1 Citation (Scopus) -
High risk of developing dementia in Parkinson's disease: a Swedish registry-based study
Åström, D. O., Simonsen, J., Raket, L. L., Sgarbi, S., Hellsten, J., Hagell, P., Norlin, J. M., Kellerborg, K., Martinez-Martin, P. & Odin, P., 2022-Dec-01, In: Scientific Reports. 12, 1, p. 16759 16759.Research output: Contribution to journal › Article › peer-review
Open Access -
Like a Wave in Its Variable Shape, Breadth, and Depth: A Qualitative Interview Study of Experiences of Daytime Sleepiness in People with Parkinson's Disease
Höglund, A., Hagell, P., Östlund, U., Fredrikson, S. & Sandlund, C., 2022-Sept-27, In: Parkinson's Disease. 2022, p. 1-9 9 p., 9980177.Research output: Contribution to journal › Article › peer-review
Open AccessFile
Datasets
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A classical test theory evaluation of the Sleep Condition Indicator accounting for the ordinal nature of item response data
Hellström, A. (Creator), Hagell, P. (Creator), Broström, A. (Creator), Ulander, M. (Creator), Luik, A. I. (Creator), Espie, C. A. (Creator) & Årestedt, K. (Creator), figshare, 2019-Mar-14
DOI: 10.1371/journal.pone.0213533.s001
Dataset
Activities
- 11 Supervision of PhD students
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Care meetings in disadvantaged neighborhoods – a person-centered perspective in the ambulance care service in Sweden
Peter Hagell (First/primary/Lead supervisior), Martin Persson (Deputy supervisor) & Mats Holmberg (Deputy supervisor)
2021-Jan-29 → …Activity: Examination and supervision › Supervision of PhD students
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Measuring outpatient person-centered care for people with long-term disorders
Peter Hagell (First/primary/Lead supervisior), Albert Westergren (Deputy supervisor), Joakim Ekstrand (Examiner) & Sidona-Valentina Bala (Deputy supervisor)
2021-Jan-29 → …Activity: Examination and supervision › Supervision of PhD students
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Livet efter ett hjärtstopp
Peter Hagell (Deputy supervisor), Petra Lilja Andersson (Deputy supervisor) & Årestedt Kristofer (First/primary/Lead supervisior)
2020-Jun-17 → …Activity: Examination and supervision › Supervision of PhD students
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Self-management support to handle everyday life with Parkinson's disease
Peter Hagell (Deputy supervisor)
2015-Feb-02 → 2020-May-29Activity: Examination and supervision › Supervision of PhD students
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Susanne Lindskov
Klas Sjoberg (First/primary/Lead supervisior), Albert Westergren (Deputy supervisor) & Peter Hagell (Deputy supervisor)
2015Activity: Examination and supervision › Supervision of PhD students