Understanding user involvement in research in aging and health

Susanne Iwarsson, Anna-Karin Edberg, Synneve Dahlin Ivanoff, Elizabeth Hanson, Håkan Jönson, Steven Schmidt

Research output: Contribution to journalArticlepeer-review


User involvement in research is advocated as an avenue for efficient societal developments. In this article, we identify potentials, problems, and challenges related to research on aging and health, and identify and illustrate research priorities using an evolving research program as an example. Involving user representatives in the development phase, the UserAge program engages researchers at four universities in Sweden. The program builds upon previous and ongoing research with user involvement. The goals are to maximize the impact of user involvement, enhance the execution of high-quality research, increase the knowledge about what difference user involvement can make, and evaluate the impact of research about and with user involvement. Taken together and communicated in the international scientific community as well as in a wide range of public arenas, the empirical results, capacity-building, and modeling efforts of UserAge will have an impact not only on the present situation but also on the future.

Original languageEnglish
Pages (from-to)661-675
Number of pages14
JournalGerontology & geriatric medicine
Issue number18
Publication statusPublished - 2019

Swedish Standard Keywords

  • Health Sciences (303)


  • community
  • disability
  • frail older adults
  • gerontology
  • nursing
  • public and patient involvement
  • public health/public policy
  • rehabilitation
  • social work
  • volunteering


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