Att leva med en diagnos

: Utifrån föräldrars berättelser

Abstract

The purpose of our study was to identify and present experiences encountered by parents with a child with diagnosis. Those narratives are made open for the public. Data has been collected through ten interviews with parents having children with a diagnosis. These interviews have also been complemented by interviews with one child and one youth. The parents and the children who have been interviewed, all have their own stories and experiences of how it is to live with a diagnosis in the family and for all families there are different diagnosis. Some of the families have had the diagnosis confirmed, and some are living with overlapping diagnosis, everything dependent on the symptoms picture of the child. A qualitative research method has been used using semi structured interviews. The interviews have been analysed using a narrative method, which in our case resulted in nine different stories. The narrative way of doing analysis in this study has been chosen, as the purpose of the study has been to make the different narratives public. The narratives are tied to the following theories: normality, stigmatization, categorization and economic motives. This study concludes, based on the family interviews, that there is no strong correlation to support any firm conclusion due to different experienced in all cases. However, one result which is evident in all cases is that the families are continuously struggling to get help in school, to get special support from society.