Palliativ vård i hemmet vid hjärtsvikt
: närståendes upplevelser

Translated title of the thesis: Heart failure in palliative home care: next of kin's experiences
  • Ulrika Lexenius

    Student thesis: Professional degree, Advanced level

    Abstract

    For many next of kin important changes took place when heart failure was diagnosed. Meanings of living with heart failure emerged as "knocking on death's door" yet surviving and never knowing what to expect of tomorrow. Staying at home in the palliative phase of life brings multiple complex issues for next of kin who is subject to stress during a along period of time. The aim of the study was: To illuminate next of kin's experiences when a partner with heart failure is taken care of in palliative home care setting. Method: A general litterature review based on twelve qualitative and three quantitative scientific articles. Findings: Next of kin in palliative home care setting described situations of being restricted, they experienced stress and anxiety, and took on the role of being "a pillar of strength". Next of kin also described how they lacked adequate medical information. Som next of kin experienced  that they received support from healthcare personnel but some lacked concrete support. Next of kin also felt it important to have influence on decisions. Conclusion: It is clear that heart failure seriously affects the lives of next of kin. This group need to be further investigated, especially when it comes to palliative care at home.

    Date of Award2010-Apr-26
    Original languageSwedish
    SupervisorLars Axelsson (Supervisor)

    University credits

    • 15 HE credits

    Swedish Standard Keywords

    • Nursing (30305)

    Keywords

    • caregiver
    • heart failure
    • palliative care
    • home care

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