Persons with Parkinson's disease and their care partners want support from healthcare to develop the skills to handle everyday life with disease. Earlier findings indicate that participants of the self-management program Swedish National Parkinson School experience several benefits of the program. The purpose of this qualitative observational study was to explore if participants had implemented the strategies of self-monitoring included in the program, and use them to communicate health care status and needs in clinical encounters. Data was collected 3-15 months after participation in the program and analysed using constant comparative analysis. Three categories were evident: "Self-observation in everyday life", "Self-care activities to promote health" and "Managing emotional impact of Parkinson's Disease". Categories were linked together in a core category that highlight the use of self-management strategies described by participants during clinical encounters. Results confirmed that persons with Parkinson's disease and care partners use the techniques of self-observation in their everyday lives. Observations of effects in clinical care can be a valuable approach to evaluate the outcomes educational interventions and their benefits for individuals and health care. This article is protected by copyright. All rights reserved.
|Tidskrift||Nursing and Health Sciences|
|Status||Publicerad - 2020|
- Hälsovetenskap (303)