TY - JOUR
T1 - Feasibility and linguistic validity of the Swedish version of the PDQ-39.
AU - Hagell, Peter
PY - 2005
Y1 - 2005
N2 - The Parkinson's Disease Questionnaire - 39 is the most widely used disease-specific health status questionnaire for Parkinson's disease. Evaluations of various language versions have focused on psychometric properties, whereas documented evaluations regarding linguistic validity, respondent burden and questionnaire content are largely lacking. Work with the Swedish Parkinson's Disease Questionnaire - 39 has taken these aspects into account, which has resulted in a linguistically revised version which is currently being evaluated. Initial observations indicate that the revision rectified linguistic but not nonlinguistic problems, and that its feasibility in terms of respondent burden in more advanced disease can be challenged. There are also indications for the need for content improvements. These experiences are discussed along with their implications.
AB - The Parkinson's Disease Questionnaire - 39 is the most widely used disease-specific health status questionnaire for Parkinson's disease. Evaluations of various language versions have focused on psychometric properties, whereas documented evaluations regarding linguistic validity, respondent burden and questionnaire content are largely lacking. Work with the Swedish Parkinson's Disease Questionnaire - 39 has taken these aspects into account, which has resulted in a linguistically revised version which is currently being evaluated. Initial observations indicate that the revision rectified linguistic but not nonlinguistic problems, and that its feasibility in terms of respondent burden in more advanced disease can be challenged. There are also indications for the need for content improvements. These experiences are discussed along with their implications.
KW - Adaptation
KW - Parkinson’s Disease Questionnaire – 39
KW - Parkinson’s disease
KW - feasibility
KW - health status
KW - linguistic validity
KW - patient-reported outcomes
U2 - 10.1586/14737167.5.2.131
DO - 10.1586/14737167.5.2.131
M3 - Article
VL - 5
SP - 131
EP - 136
JO - Expert review of pharmacoeconomics & outcomes research
JF - Expert review of pharmacoeconomics & outcomes research
SN - 1473-7167
IS - 2
ER -