Respondent burden and patient-perceived validity of the PDQ-39

M.-Y. Kim, A. Dahlberg, Peter Hagell

Forskningsoutput: TidskriftsbidragArtikelPeer review

19 Citeringar (Scopus)


OBJECTIVES: To evaluate the respondent burden and patient-perceived content validity of the Parkinson's disease (PD)-specific health status questionnaire PDQ-39, and the linguistic validity of its revised Swedish version.

MATERIALS AND METHODS: Eighteen PD patients completed the revised Swedish version of the PDQ-39. Respondent burden was assessed by recording the time taken to complete the questionnaire. Content and linguistic validity was evaluated qualitatively.

RESULTS: Patients with mild, moderate and advanced PD needed a mean time of 9.5, 11.3 and 20.1 min, respectively, to complete the PDQ-39. One-third of the patients identified irrelevant items and 50% identified important health-related areas that were missing. Revisions had eliminated previous linguistic problems with the Swedish PDQ-39.

CONCLUSIONS: Undue respondent burden challenged the appropriateness of the PDQ-39 among patients with more advanced disease. Overall content validity was acceptable but compromised by lack of important content areas. Observations supported the linguistic validity of the revised Swedish PDQ-39.

Sidor (från-till)132-137
Antal sidor5
TidskriftActa Neurologica Scandinavica
StatusPublicerad - 2006
Externt publiceradJa

Nationell ämneskategori

  • Neurologi (30207)


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