Translation and pilot study of the cleft hearing appearance and speech questionnaire (CHASQ)

Mia Stiernman; Leva Maulina; Zepa Inta; Triin Jagomägi; Nenad Tanaskovic; Radost Velikova; Youri Anastassov; Julija Radojićić; Zoran Pesic; Branislav Trifunović; Martina Drevensek; Radu Spataru; Tanja Boljevic; Radmila Dimovska; Slave Naumovski; Nichola Rumsey; Fabio Zucchelli; Nicholas Sharratt; Mario Argyrides; Kristina Klintö; Magnus Becker; Martin Persson

doi:10.1007/s00238-019-01543-9

Translation and pilot study of the cleft hearing appearance and speech questionnaire (CHASQ)

Mia Stiernman, Leva Maulina, Zepa Inta, Triin Jagomägi, Nenad Tanaskovic, Radost Velikova, Youri Anastassov, Julija Radojićić, Zoran Pesic, Branislav Trifunović, Martina Drevensek, Radu Spataru, Tanja Boljevic, Radmila Dimovska, Slave Naumovski, Nichola Rumsey, Fabio Zucchelli, Nicholas Sharratt, Mario Argyrides, Kristina KlintöMagnus Becker, Martin Persson

Forskningsoutput: Tidskriftsbidrag › Artikel › Peer review

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Background

There has been a lack of a standardized protocol for collection of patient reported outcomes (PRO) and detection of and indication for psychological treatment in cleft care. The objectives of this paper was to translate Cleft Hearing Appearance and Speech Questionnaire (CHASQ) into eight European languages, to investigate whether levels of PRO in patients with cleft lip and/or cleft palate (CL/P) were comparable across countries and to investigate clinician experience of the instrument.

Methods

The PRO measure—CHASQ—was translated into Bulgarian, Estonian, Greek, Latvian, Macedonian, Romanian, Serbian and Swedish and implemented with patients in the respective countries. A focus group discussion was conducted to investigate health care professional experience on the use of CHASQ in their clinics. Data was analysed in accordance with the principles of thematic analysis.

Results

Analysis showed statistically significant differences between countries and groups of diagnosis in CHASQ scores. CHASQ helped clinicians gain patient information and informed on treatment decisions, broadened the clinicians’ role as caregivers and was perceived as short and easy to use. Limited time and resources in clinics were limitations in implementing the instrument.

Conclusions

Translation and utilization of CHASQ facilitated international comparison and cooperation. Linguistically, valid replicas of CHASQ are now available in many European languages. Results from this study show that CHASQ may be used for collection of PRO on patient satisfaction and to spark conversation between clinicians, patients and families.

Level of evidence: Not rateable.

Originalspråk	Engelska
Sidor (från-till)	583-592
Antal sidor	9
Tidskrift	European Journal of Plastic Surgery
Volym	42
DOI	https://doi.org/10.1007/s00238-019-01543-9
Status	Publicerad - 2019

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10.1007/s00238-019-01543-9

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Stiernman, M., Maulina, L., Inta, Z., Jagomägi, T., Tanaskovic, N., Velikova, R., Anastassov, Y., Radojićić, J., Pesic, Z., Trifunović, B., Drevensek, M., Spataru, R., Boljevic, T., Dimovska, R., Naumovski, S., Rumsey, N., Zucchelli, F., Sharratt, N., Argyrides, M., ... Persson, M. (2019). Translation and pilot study of the cleft hearing appearance and speech questionnaire (CHASQ). European Journal of Plastic Surgery, 42, 583-592. https://doi.org/10.1007/s00238-019-01543-9

@article{f8c23ae047ef4eb19329f7435faf763e,

title = "Translation and pilot study of the cleft hearing appearance and speech questionnaire (CHASQ)",

abstract = "BackgroundThere has been a lack of a standardized protocol for collection of patient reported outcomes (PRO) and detection of and indication for psychological treatment in cleft care. The objectives of this paper was to translate Cleft Hearing Appearance and Speech Questionnaire (CHASQ) into eight European languages, to investigate whether levels of PRO in patients with cleft lip and/or cleft palate (CL/P) were comparable across countries and to investigate clinician experience of the instrument.MethodsThe PRO measure—CHASQ—was translated into Bulgarian, Estonian, Greek, Latvian, Macedonian, Romanian, Serbian and Swedish and implemented with patients in the respective countries. A focus group discussion was conducted to investigate health care professional experience on the use of CHASQ in their clinics. Data was analysed in accordance with the principles of thematic analysis.ResultsAnalysis showed statistically significant differences between countries and groups of diagnosis in CHASQ scores. CHASQ helped clinicians gain patient information and informed on treatment decisions, broadened the clinicians{\textquoteright} role as caregivers and was perceived as short and easy to use. Limited time and resources in clinics were limitations in implementing the instrument.ConclusionsTranslation and utilization of CHASQ facilitated international comparison and cooperation. Linguistically, valid replicas of CHASQ are now available in many European languages. Results from this study show that CHASQ may be used for collection of PRO on patient satisfaction and to spark conversation between clinicians, patients and families.Level of evidence: Not rateable.",

keywords = "Cleft lip and/or cleft palate, International cooperation, Patient reported outcomes, Qualitative results, Translation",

author = "Mia Stiernman and Leva Maulina and Zepa Inta and Triin Jagom{\"a}gi and Nenad Tanaskovic and Radost Velikova and Youri Anastassov and Julija Radoji{\'c}i{\'c} and Zoran Pesic and Branislav Trifunovi{\'c} and Martina Drevensek and Radu Spataru and Tanja Boljevic and Radmila Dimovska and Slave Naumovski and Nichola Rumsey and Fabio Zucchelli and Nicholas Sharratt and Mario Argyrides and Kristina Klint{\"o} and Magnus Becker and Martin Persson",

year = "2019",

doi = "10.1007/s00238-019-01543-9",

language = "English",

volume = "42",

pages = "583--592",

journal = "European Journal of Plastic Surgery",

issn = "0930-343X",

publisher = "Springer Verlag",

}

Stiernman, M, Maulina, L, Inta, Z, Jagomägi, T, Tanaskovic, N, Velikova, R, Anastassov, Y, Radojićić, J, Pesic, Z, Trifunović, B, Drevensek, M, Spataru, R, Boljevic, T, Dimovska, R, Naumovski, S, Rumsey, N, Zucchelli, F, Sharratt, N, Argyrides, M, Klintö, K, Becker, M & Persson, M 2019, 'Translation and pilot study of the cleft hearing appearance and speech questionnaire (CHASQ)', European Journal of Plastic Surgery, vol. 42, s. 583-592. https://doi.org/10.1007/s00238-019-01543-9

TY - JOUR

T1 - Translation and pilot study of the cleft hearing appearance and speech questionnaire (CHASQ)

AU - Stiernman, Mia

AU - Maulina, Leva

AU - Inta, Zepa

AU - Jagomägi, Triin

AU - Tanaskovic, Nenad

AU - Velikova, Radost

AU - Anastassov, Youri

AU - Radojićić, Julija

AU - Pesic, Zoran

AU - Trifunović, Branislav

AU - Drevensek, Martina

AU - Spataru, Radu

AU - Boljevic, Tanja

AU - Dimovska, Radmila

AU - Naumovski, Slave

AU - Rumsey, Nichola

AU - Zucchelli, Fabio

AU - Sharratt, Nicholas

AU - Argyrides, Mario

AU - Klintö, Kristina

AU - Becker, Magnus

AU - Persson, Martin

PY - 2019

Y1 - 2019

N2 - BackgroundThere has been a lack of a standardized protocol for collection of patient reported outcomes (PRO) and detection of and indication for psychological treatment in cleft care. The objectives of this paper was to translate Cleft Hearing Appearance and Speech Questionnaire (CHASQ) into eight European languages, to investigate whether levels of PRO in patients with cleft lip and/or cleft palate (CL/P) were comparable across countries and to investigate clinician experience of the instrument.MethodsThe PRO measure—CHASQ—was translated into Bulgarian, Estonian, Greek, Latvian, Macedonian, Romanian, Serbian and Swedish and implemented with patients in the respective countries. A focus group discussion was conducted to investigate health care professional experience on the use of CHASQ in their clinics. Data was analysed in accordance with the principles of thematic analysis.ResultsAnalysis showed statistically significant differences between countries and groups of diagnosis in CHASQ scores. CHASQ helped clinicians gain patient information and informed on treatment decisions, broadened the clinicians’ role as caregivers and was perceived as short and easy to use. Limited time and resources in clinics were limitations in implementing the instrument.ConclusionsTranslation and utilization of CHASQ facilitated international comparison and cooperation. Linguistically, valid replicas of CHASQ are now available in many European languages. Results from this study show that CHASQ may be used for collection of PRO on patient satisfaction and to spark conversation between clinicians, patients and families.Level of evidence: Not rateable.

AB - BackgroundThere has been a lack of a standardized protocol for collection of patient reported outcomes (PRO) and detection of and indication for psychological treatment in cleft care. The objectives of this paper was to translate Cleft Hearing Appearance and Speech Questionnaire (CHASQ) into eight European languages, to investigate whether levels of PRO in patients with cleft lip and/or cleft palate (CL/P) were comparable across countries and to investigate clinician experience of the instrument.MethodsThe PRO measure—CHASQ—was translated into Bulgarian, Estonian, Greek, Latvian, Macedonian, Romanian, Serbian and Swedish and implemented with patients in the respective countries. A focus group discussion was conducted to investigate health care professional experience on the use of CHASQ in their clinics. Data was analysed in accordance with the principles of thematic analysis.ResultsAnalysis showed statistically significant differences between countries and groups of diagnosis in CHASQ scores. CHASQ helped clinicians gain patient information and informed on treatment decisions, broadened the clinicians’ role as caregivers and was perceived as short and easy to use. Limited time and resources in clinics were limitations in implementing the instrument.ConclusionsTranslation and utilization of CHASQ facilitated international comparison and cooperation. Linguistically, valid replicas of CHASQ are now available in many European languages. Results from this study show that CHASQ may be used for collection of PRO on patient satisfaction and to spark conversation between clinicians, patients and families.Level of evidence: Not rateable.

KW - Cleft lip and/or cleft palate

KW - International cooperation

KW - Patient reported outcomes

KW - Qualitative results

KW - Translation

U2 - 10.1007/s00238-019-01543-9

DO - 10.1007/s00238-019-01543-9

M3 - Article

SN - 0930-343X

VL - 42

SP - 583

EP - 592

JO - European Journal of Plastic Surgery

JF - European Journal of Plastic Surgery

ER -

Translation and pilot study of the cleft hearing appearance and speech questionnaire (CHASQ)

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